After suffering horrific night sweats, fatigue and a cough that was simply exhausting, I was diagnosed with Sarcoidosis in my lymph nodes, lungs and nervous system. Originally thought to be stage I lymphoma, general doctors seem to have little understanding of this disease, one senior Doctor even told me "you'll be ok in a few week", 4 years later I am still not fixed. Thanks to these fantastic guys and the support network around it, I have found friends for life, the strength to take on the NHS and I won. I'm now under a specialist neurologist in London and I owe so much to this charity. I am currently shielding, so this distance will be covered in my own property.

I also have sacroiliac joint dysfunction, dehydrated discs in my spine and I live with bipolar type 2. This is massive for me! :-)

The big ones get all the limelight, its time for small charities to shine.

SarcoidosisUK is a tiny charity that exists to provide support and information for people with sarcoidosis, and to fund research into a cure for the condition. It is currently the among the world’s largest sarcoidosis research funders, and is passionate about helping to find a cure. SarcoidosisUK is dedicated to funding at least one major piece of research per year, and will continue to do this until a cure is found. Please donate - we rely on your support to keep going! For further information on this disease, please check out their website or the BLF and NOT the NHS pages. Thank you.