Story
I am raising money for The Dame Vera Lynn Trust For Children With Cerebal Palsy. My daughter Jennifer attended the School for Parents run by The Dame Vera Lynn Trust for two years.
Jennifer has a clinical diagnosis of Gillespie’s Syndrome (a rare, genetic condition for which the gene has not yet been identified and on which there is very little literature). Amongst other things she has a small cerebellum, which means that she has no natural balance. If Jennifer were to try to stand on her own she would fall straight over. Her gross and fine motor skills are affected, making everyday tasks of walking, talking, speaking and writing a huge effort.
During Jennifer’s time at School for Parents she was set achievable goals which were constantly built upon to ensure that her development and progress never stood still. All of the amazing teachers pushed Jennifer and told her, and taught me, that she could achieve things which initially seemed to be impossible. Being in an environment which celebrated progress, however little, was so important for us all.
Jennifer is now in a mainstream school and has such a strong will which I believe has developed from the time she spent at School for Parents. She has grown to believe that what others see as being impossible for her, is in fact achievable. We still have a long way to go on Jennifer's journey and I am certain that there will be tough times ahead, however Jennifer has achieved more in her short life to date than we ever dreamed of and for that we owe everything to the start she was given by The Dame Vera Lynn Trust For Children With Cerebal Palsy. Running this marathon and raising money so that other children can benefit from the same help Jennifer did is part of my way of saying thank you.