Ellesmere Triathlon - 1.5km swim/40km cycle/10km run!
Clare Charlton is raising money for FAST UK (Foundation for Angelman Syndrome Therapeutics)
Team: Ellies Kick AS Team
Story
We’re raising money as our daughter Ellie has been diagnosed with Angelmans Syndrome (AS).
Angelmans Syndrome is a rare genetic condition that affects speech, movement and in 80% of cases causes seizures. However, there is hope on the horizon through the research and development of therapies and a potential cure for Angelmans being led by FAST, here in the UK and around the world.
We want to raise as much money as we can to support the amazing work done by FAST and help kick AS.