Hi everyone!

As many of you know, our son was first fractured his leg at 8 months old. When he was three years old, we finally got an official diagnosis of Gorham-Stout Disease. Our lives were turned upside down!

Coby is so brave and fights every day, not letting his weak bones, pain, fractures, scans, surgeries and many many hospital appointments stand in his way. 

Unfortunately, these conditions are so rare that not much is know about them. This makes managing and treating the condition a very daunting and difficult task. We are raising this money to fund research, in the hope that one day a cure will be found!

Thank you all for your support, you don't know how much we appreciate it and how much it means to us.

The Kilgours 

xx