Story
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Steven Johnsons Syndrome is a rare and very serious disorder which often occurs from a reaction to medicine. It effects your skin and mucous membranes (mainly eyes, mouth, throat) it can also effect the skin all over your body starting as a rash but blistering like burns.
Here is my daughters own story...
"In April 2012 I was diagnosed with SJS after taking penicillin for a serious chest infection which lead to pneumonia. The reaction to penicillin made my throat close, my mouth and lips blistered and my eyes were badly effected. I was on a drip for 8 days keeping up my fluids asI was unable to take anything by mouth, and didn't eat for over two weeks. My sight was beginning to fade. Luckily the doctors recognised it early, and was seen very quickly by ophthalmology who prescribed steroid eye drops which had to be given every two hours day and night for two weeks, then seven times a day for the next couple of months. I missed a lot of school due to the severe fatigue and pain I suffered."
To cut a long story short, Yasmin made a good recovery after a couple of months although she does still suffer with her eyes and fatigue.
Having SJS requires hospitalisation, immediate attention and knowledge to stop it progressing and becoming fatal. Around 95% of SJS Survivors have problems with their eyes and vision in the long term.
Your donations will help raise awareness for this condition and help the charity support survivors and their families to overcome the emotional and psychological challenges they may experience.
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