In April 2012, aged only 3 my niece Evie was diagnosed with diffuse intrinsic pontine glioma (DIPG).  This is a tumour in the brainstem and is inoperable.  Survival rate is 0%.  DIPG slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline.

 

On 25/01/2013, Evie's fight was finally over.  She went through months of radiotherapy, chemotherapy, medication and constant visits to the hospital.  All the way through Evie took it in her stride and the closest she came to a complaint was telling her mum "it's no fair!"

 

Words can't describe what its like to see an active wee girl slowly lose the use of her limbs, struggling to speak and breathe, her appearance change, but still maintaining the same cheeky wee personality.  Even during that Evie still managed to give us all great memories, giving us one last great birthday and Christmas with her.  Both Evie and my sister have become my heroes for the way they managed to keep going through this.

 

If you can spare a little cash towards research to help prevent this awful illness then please do.

 

In memory of Evie Elizabeth Scott - forever 4.