For any family to have their son diagnosed with Duchenne Muscular Dystrophy is devastating. DMD is a genetic life limiting condition which causes the bodies muscles to weaken and waste. Currently there is no cure. Duchenne UKs main aim is to End Duchenne. This can only be done by funding research into drug trials and treatments for our boys. Each step of drug development is invested in by Duchenne UK, in the hope that one day we will End Duchenne.
Duchenne UK have provided us education, advice and a fantastic support network of other parents at different stages in their DMD journey. Their annual conference brings parents together to update us on the latest research, how drug trials are developing and how to access financial and social care needs of our families, while providing hope for the future.