Story
Come join me and hundreds of others getting "out of the house" and take your STEPS for others - my sweet Carley and others that have been diagnosed with Sturge-Weber Syndrome! I'm asking you to make either a flat donation or up to $.01 per step by June 30th as I reach my goal of 100,000 steps. Every step taken can be in honor of someone we have lost to this rare disorder or for someone who's a strong warrior standing up to the symptoms daily hoping we can take those next steps closer to a cure. My goal in the next 3 months is to raise $2,000 or more towards research and programs to improve the quality of life for those with port-wine birthmarks and Sturge-Weber Syndrome. I feel we are just STEPS away from the critical piece of the research puzzle to find that cure in the near future. I hope you will consider "Stepping out with me" and do some good this spring - join my team (ask for details and I can send you the info to create your own page!), donate, or share this page starting April 1 through June 30. Call or text me to go "step out" at a local park. Together we can make a difference for Sturge-Weber!