Thanks for taking the time to visit our JustGiving page.
We are the proud parents of George, and his younger brother Jack. In November 2016, our world was turned upside down when George was diagnosed at Great Ormond Street Hospital with Duchenne Muscular Dystrophy (DMD) at the age of 8. A genetic muscle wasting disease with no cure and 100% fatal! We can't begin to explain the heartbreak, sadness, tears, the anger, the emotional pain we feel, and devastation that this is really happening to our son...our family....but it is!...This terrible progressive and rare disease is very real, and could happen to any family. With endless hospital appointments our life journey has changed forever from one blood test!
DMD is the most common killer in boys and the severest genetic muscle wasting condition. There are approx 3500 people affected (mostly boys), and it is caused by a mutation in the dystrophin gene. Dystrophin is a protein that is vital for muscle strength, and boys with DMD are missing this in their bodies. Their muscles gradually get weaker, which starts in their legs and progresses to the upper bodies. They are expected to be in a wheelchair by the age of 12, with life expectancy mid to late twenties.
George finds it hard to walk, run, climb stairs and keep up with his friends, although he loves to go swimming, horse riding, karate and ride on his bike which we are so grateful for. The exercise, steroids, nights splint on his legs and physio all help to keep him as strong as possible for longer, but we can see him getting weaker month on month. George is such a kind and caring boy and we are very proud of him and his achievements. Whilst George is weaker physically, he is amazingly strong mentally and emotionally, and so very brave! He doesn't know what the future will hold and we plan month on month, enjoying all the little things in life to the full. We pray that a cure for the disease will come in time that we never have to explain the future!
We can't control what this heartbreaking disease is doing to our son and other boys with DMD, so we have decided to try and raise as much money as possible to fund research for a cure. For the first time in 30 years, scientists are closer than ever to finding a cure for DMD within the next 5 years. We pray with all our hearts that this will happen, and provide the opportunity to extend our beautiful son's life, and all those within the DMD community.
We would be very grateful for any donations however small or large to help us. Please use the justgiving 'Donate' button on the front page, and all funds raised will go directly to Harrison's Fund. This is a parent led registered charity and is committed to the cause of finding a cure. You can also donate up to £10 by TEXT by quoting 'JKGJ55' and the £ amount you wish to donate, and send to 70070.
We are running a number of local events if you wish to join or support us (see below), and we have been overwhelmed by support from friends and family who are taking part or organising other events to help us raise more funds.
15th March 2017 - Thank you to Claire Crawford and Citibank who are holding a dress down day to raise money for Harrison's Fund
23rd to 26th March 2017 - Billericay Brewing Company are holding a Beerfest and have kindly agreed to support us for their charity this month. Thank you!
8th April 2017 - Thank you to my cousin Gary Faulkner who is running the Paris Marathon to raise funds for Cure4George
24th May 2017 - Charity Golf Day at Stockbrook Manor, Billericay. If you would like to attend, contact John on 07703 719495 or email: firstname.lastname@example.org
16th July 2017 - Thank you to George's PE teacher Mr McDermid who is completing Ironman and offered to help raise funds for Cure4George. Donations on this page are very welcome.
30th July 2017 - John Shippey and Lee Fisher (First Kicks) are looking for sponsors to complete the RideLondon-Surrey 100 mile bike ride. You can use this page to donate directly.
Date TBC - Quiz Night - Contact Kerry by email: email@example.com
Date TBC - Summer 'Brunch for a donation'
Here are some easy fundraising opportunities if you wish to help further.
- Hold a dress down day at work where each person donate £1
- Hold a coffee morning, office bake off, cake sale
- Recycle for cash, and donate the money. For anyone based in Billericay who would like us to pick up clothes recycling to exchange for cash, please contact John on 07703719495 or take it to 'Cash4Clobber' and donate directly
Every donation counts, however big or small.
From the bottom of our hearts we would like to thank everyone for all your ongoing support in helping us raise funds to find a cure and save George. We will be forever grateful.
Thank you so much...
Kerry and John Shippey (George's Mummy and Daddy!)