Story
#CureMSD is a cause close to our hearts. In 2021, our princess Orla Rose was diagnosed with this horrible condition. It is a horrible condition which has been likened to Alzheimer's but in children. This condition is extremely rare and there are little over 100 cases in the world, unfortunately for these children and their families this condition is terminal with no treatments available at present. The United MSD Foundation have done some incredible work over the past few years to develop a cure, we finally have one! We are so close! The only issue stopping us now is funding, this is where we need your help. To support us and other families suffering from this horrific illness, please donate to help us roll out a cure. #CureMSD
If you would like to read more of our story, please click on the link below:
Orla | United MSD Foundation (curemsd.org)