There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing and affected families can experience significant barriers in their lives.

The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships and improve their mental wellbeing and resilience through our four family support programmes:

1. Sandcastle Memories - bespoke family respite breaks, annual attraction passes and days out.
2. Sandcastle Smiles - a schedule of regular family recreational activities to enjoy within the home.
3. Sandcastle Connections - creating peer support networks, improving connectedness and reducing isolation: and
4. Sandcastle Support Hub - providing information, practical, emotional and social support for those living with a rare genetic condition and their carers. 

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