In 1984 my mum only had days left to live as she slipped into a coma, finally diagnosed with Addisons disease and relying on daily medication she was unable to find any support to help her with this scary diagnosis.
Addison’s disease (hypoadrenalism or adrenal insufficiency) is a rare, potentially fatal condition where the adrenal glands cease to function. People with Addison’s disease require life-long, daily treatment with replacement steroid hormones.
Frustrated with a lack of support she decided to start a self help group which from humble beginnings with a typed newsletter it has grown into an international group which helps thousands of Addisonians and thier relatives to live with this illness and offer support and guidance to them and raise the profile of Addison’s with the medical profession. Now as the patron of the group and since being awarded an MBE for her charity work she continues to support and help people.
I couldn’t be prouder to run in support of Mums work and all those her group supports on a daily basis.
Every penny raised helps us support people affected by Addison's Disease, a rare disease with just 9,000 sufferers in UK and Ireland.