Story
My godson, George, was diagnosed with Duchenne Muscular Dystrophy just before his 4th birthday. Along with his dad and another two of my closest friends I will be taking part in the Pedal Paddle Peak 2021 challenge in the Lake District, with the aim of raising funds for Muscular Dystrophy UK (MDUK) as well as George specifically.
Duchenne Muscular Dystrophy is a life-limiting muscle-wasting condition, for which there currently is no cure. MDUK are at the forefront of research into muscular dystrophy and we are fundraising specifically for research into Duchenne along with making provision for George's future care needs.
We want to raise as much money as possible for the vital research, which will hopefully find a cure for this terrible and heartbreaking disease. 80% of the funds will go towards research, with the remaining 20% held in trust for George's future care needs, which will become extensive as he grows older.