Hello there, 

I am a Neurology Research Nurse from Brighton. Around the anniversary of my Dad’s death I like to try do a solo long hike in his memory. This year I am hiking the furthest I have ever hike, 120 miles along the Greensand Way. I’d like to use this hike to also try raise some money for Elhers Danlos Support.

Elhers Danlos is a genetic connective tissue disorder which affects the collagen within the body. It can be extremely debilitating but is often considered an ‘invisible illness’.

People with EDS can experience severe symptoms such as Dislocations and subluxations of joints, Chronic pain, Brain fog, Postural orthostatic tachycardia syndrome, severe anxiety, digestive problems, vascular problems  and serious mobility issues.

EDS is often misunderstood and misdiagnosed and has very little support and very few specialist services in the U.K. 

People with EDS desperately need more support and more awareness of their condition so that is why I am trying to raise some money for Ehlers Danlos Support U.K. 

Thanks for taking the time to visit my JustGiving page.

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