Daniel and Jamie's page

Daniel Hermann is raising money for Abbie's Army
In memory of Sophia (Fifi) Hagreen
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Marathon Des Sables 2021 · 1 October 2021 to 11 October 2021 ·

Each year 450 UK children are diagnosed with brain cancer. Among these there is a tumour so aggressive that there is NO effective treatment or a CURE - Diffuse Intrinsic Pontine Glioma or DIPG. Responsible for 80% of all brain tumour death we raise vital research funds to give hope to DIPG families.

Story

We are raising money for Abbies Army to support research for DIPG, 100% of the money will go to trials and research. Diffuse Intrinsic Pontine Glioma -  (DIPG) is a highly malignant brain tumour (cancer) located in the 'PONS' or pontine area of the brain stem, almost exclusively affecting children. There is currently NO cure.

On the 12th April 2019 we lost the beautiful Sofia (Fifi) to this awful disease. Fifi was in my little boys class at school and it hit everyone like a brick, no child or family should ever have to endure this and it breaks my heart every time I think of it. There is currently no cure for this disease and even trials aren't running. If there is anything at all I/we can do to help I feel it is the least we can do.

In October, Jamie and I will run the Marathon Des Sables, 6 marathons in 6 days in the Sahara desert. We will be self sufficient for the week carrying everything we need, including food, in our back pack, sleeping under the stars. It is said to be the toughest foot race on earth and will be the biggest challenge we have, or are ever likely to face. The pain we will experience will not be a fraction of what Fifi and her family and all these other children and their families have faced and are facing on a daily basis. This is for them x

To read more about Fifi and her story please follow this link: https://www.abbiesarmy.co.uk/DIPG-Stories/DIPGStories/sofias-story/

Donation summary

Total
£11,695.85
+ £770.00 Gift Aid
Online
£6,922.72
Offline
£4,773.13

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