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Danielle Anderson-Walker avatar
Danielle Anderson-Walker

Janine and Danielle are supporting families and children living with PCD

Running the Great North Run 🏃🏻‍♀️ 🏃🏻‍♀️ for Primary Ciliary Dyskinesia (Pcd) Family Support Group because we would like to support and raise awareness

255 %
£255.00
raised of £100 target
by 12 supporters
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  • Event: SimplyHealth Great North Run 2018, 09 Sep 2018

Primary Ciliary Dyskinesia (Pcd) Family Support Group

We help and inform PCD patients/families to live happy and healthier lives

Charity Registration No. 1049931

Story

Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility. The condition involves recurrent infections in the nose, ears, sinuses and lungs. 

The PCD Family Support Group was formed in 1991 to: 

  • Provide support to patients and their carers who have, or are suspected of having, PCD
  • Bring PCD to the attention of medics who may come across PCD and continue to provide an up to date information service for them and the general public
  • To promote research to aid diagnosis and treatment of patients with PCD
  • Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care
  • Fundraise to support the above activities
http://pcdsupport.org.uk/about-us/
https://www.facebook.com/PcdFamilySupportGroupUk/

Help to raise awareness and support families and children living with this rare condition, Any dontations will be hugely appreciated 💕

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