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Danielle Pasquale avatar
Danielle Pasquale

olivia and Laceys mud run and ashhhk5 24 hour game streaming

we want to help the CAPS team and Stoma nurses for Barts Charity because Children in the UK with Bowel problems need you.

277 %
£1,940.00
raised of £700 target
by 42 supporters
Donate

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Charity Registration No. 212563

Story

Olivia and Lacey have grown up together, they are great friends and wanted to Help raise awareness of children's Bowel Problems , they do exist and it does not mean they are Lazy or not potty trained, which i might add people do think and do tell you they also think that.....               Olivia and Lacey will be taking part in a mud run  and my lovely friend Ash with be streaming games for 24 hours.

Ronnie-Scott who is now 8 was born at 32 weeks, weighing 3lb 130z. He spent 16 days in intensive care and  a total 3 weeks in hospital . We were so happy when he came home. Ronnie-Scott has always suffered with tummy aches and trouble opening his Bowels as a baby, we were told it was because he was premature and it took longer for his food to digest, sometimes he could not even walk as his pain was so bad, we saw a couple of consultants at our local hospital who recommended we took Dairy away from his diet and also had to put him on a high dosage of laxatives to help him out. this went on for 4 years and the pain become so bad for him i asked my GP to send me to somewhere where he could be tested further, we were referred to The Caps team at The Royal London hospital and had our first appointment in August 2018. We had appointments every 3 moths and lots of test and tried lots of different treatments and maximum medicine intakes that sadly did not work for us. Who would have thought that going to the toilet can cause so much  pain and emotional upset, but it can . My little boy has had chronic pain for all of his life, it has really affected him growing up and he was becoming very distressed and hardly wanted to leave the house. His attendance at school became very poor .His medication could be quite high and it could cause him to have accidents or overflow accidents, where the bowel is so blocked it can just leak out, we call that the sneaky poo. He would have to wear incontinence pads or pull ups, this became unhealthy for him as he would say Mummy i am not a Baby why does my body think i am.  In April  2019 after another xray showed that his right side of his Bowel was completely blocked it was recommended to us that our child has an ACE STOMA as although the condition my son has is not life threatening, i was finding his spirit of being a little kid dissapearing as all he felt was shame.

on the 19th july 2019 at 11.35am Ronnie-Scott was taken down to Theatre and had a Ace Stoma fitted, we now do bowel washout through a small hole in his tummy where a thin tube has been place directly in to the usually blocked part of his bowl and we administer medicine to clean the Bowel, that was 13 days ago, he spent 5 days in hospital and i care for him at home and at the moment we do the the washouts every day but that should reduce in time. in those 13 days my son has not had 1 accident and has not had to wear a pull up or incontinence pad,in that short space of time i have seen a massive change in him.

with out the specialist equipment used to test Ronnie-Scott i really dont think we would be where we are today, 

 Many of the patients that are seen have tried numerous alternative solutions before they are referred to the centre. In 2017 CAPS purchased the endoanal ultrasound machine which can be used paediatric patients and has a smaller probe than traditional imaging machines that are commonly used.

This is a much needed development, as according to Eleni, paediatric departments for bowel condition treatments are around 20 years behind those for adults. The endoanal ultrasound machine is used to image muscles and identify the structural abnormalities that cause bowel conditions such as constipation and soiling. These conditions can have a significant and detrimental impact on the children affected and is often disruptive to their school attendance and general quality of life.

we would like to raise as much money as we can to help assit many other children like mine. 

Children should not have to suffer like this if we can help.

Please can you donate to such a great cause so close to my heart, whilst most 8 year olds are usually having a great time having playdates and enjoying after school clubs and sleep overs. i had a little boy that just wanted to be normal .

Barts Charity supports the remarkable work of staff and researchers at the Barts Health group of hospitals and Barts and The London School of Medicine and Dentistry, funding ground-breaking research, state-of-the-art equipment and innovative healthcare projects. Thank you very much for your donation


Photos

15
  • Ronnie-Scott 1 day old +13

Supporters

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