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16 years ago Danny was born with Hypoplastic Left Heart Syndrome (HLHS), a congenital heart condition incompatible with life.

At Withybush Hospital, Haverfordwest, his situation looked bleak and we were told to name him quickly; at University Hospital Wales (UHW), Cardiff we were asked to choose between comfort care (letting him die) or a series of complex operations (we chose the operation route); at Birmingham Children's Hospital (BCH) we were given hope- Danny had his first successful open heart surgery and we were introduced to Little Hearts Matters.

Danny has now had three major open heart surgeries and regularly has "repair work" (enlarging stents etc).  His heart cannot be mended but instead is re-plumbed to give him a chance of life.  The future is unknown and he may require a heart transplant in the future.  

As Danny's condition is so complex local hospitals don't have the knowledge or expertise about HLHS.  We live in Pembrokeshire, Wales but are under the care of Birmingham Children's Hospital (this year Danny will move to adult services).  The team from Cardiff also come down to Pembrokeshire to see Danny.  We have to arm ourselves with knowledge to ensure Danny receives the care he needs. 

 Since Danny was born Little Hearts Matter have supported us by informing us about his condition and treatment, which in turn we have passed on to the local medics.  They have helped us pass information onto schools and organisations that have contact with Danny through information leaflets and DVDs.  They have supported us through every operation, every bad day and with day to day needs.  They have introduced us to many other families living with a single ventricle disorder meaning we never again have to feel like we are going through this alone.  

We would like to celebrate Danny's 16th Birthday- we are so lucky to get to celebrate this milestone with him- and also raise money for Little Hearts Matter as we are so grateful for all their help.