A few years ago my young son gradually became unable to walk and was diagnosed with Perthes Disease - I had no idea and had to google it whilst standing in A&E.  Nobody truly yet knows the cause or the best treatment. This disease, and many other diseases, need funding to be investigated, for forms of treatment to be found and support given for sufferers.

We are fortunate, my son had surgery and is walking now, but will have a lifetime of dealing with the consequences of these last few years. Many other children & their families have worse experiences than us. 

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