Story
I am fundraising for East and North Hertfordshire Hospitals but this is going to a certain ward called Bluebell ward for children. After reading about a young lad called Elliot who is 8 and lives in the same town Welwyn Garden City, This young lad is an absolute fighter and he still here smiling and fighting whatever comes his way. Just below is what this young lad and his family have gone through already in life. Let’s raise as much as possible as this money will be helping other kids like Elliot and their families and the amazing staff.
Elliot was born with 2 rare chromosome disorders, the first being so rare it has no name, just a bunch of letters and numbers, the 2nd picked up more recently a few years ago from his bone marrow.
One rare chromosome on its own, can give you conditions, Elliot has not one but it all and to the most extreme..
Normally you have a sick child they have one or two conditions under a few teams..
At the age of 6, Elliot is under at GOSH-
Neurosurgery
Neurology
Immunology
Hematolgy
Cardiac
Gastro
Complex care
Respiratory
Clotting
General surgery
Genetics
And dentist!
Eyes, physio & splints and the rest locally!
This boy has been through more then most adults, Elliot knows no different, hooking him up to TPN everyday to keep him alive and injecting him in the legs is part of our bedtime routine.
3 brain surgery’s
4lumbar punctures
4 bone marrow aspirates
Gallbladder removal
Intestinal failure
Neutropenia
Pancreatitis
Endless sepsis
Septicaemia
Blood clots
12 aspirational pneumonia’s
Collapsed lungs
Neuropathy nerve damage
Hernia
The list goes on…
