No. 6 Here I come......

I am amazed and proud to be running The London Marathon again , alongside my brother in law and Lily's uncle Jonathan Pearce.

 

I am also so proud that we are amongst a team of 15 runners. Many are also running in memory of their little loved ones, others because they beleive we are a great cause.

 

Most of you will know about Lily and The Lily Foundation and some of you will know just how much we have achieved.

Lily was my third daughter and lost her short little life to a mitochondrial disease.  She died aged 8 months old after being told at 7 weeks old that she had just days to live.  These extra six months were very precious and we have some treasured moments.  Possibly most importantly we have some happy memories to share with Lily's sisters Katie and Rosie when they ask us questions about their little sister.  Memories that got me through a 50 mile run 3 years ago and will get me through this marathon!

After Lily died with Jonathan's help we set up the Lily Foundation. Lily died 6 years ago on the 30th April. We set up the charity 6 months after we lost her and have raised over ONE MILLION POUNDS! How proud are we!!!!!

The charity has 3 main aims; research, awareness and support. We now fund research programmes at three main research centers based at the Children's Evelina Hospital, Great Ormond Street and Newcastle Universtiy. We fund doctors and nurses training needs. And finally we provide support for families who find themselves in the position that Liz and I found ourselves in over 6 years ago. Liz is there to answer the phone or an email to any parent or family relative. We send families with sick children to Center Parcs to build special memories and families who have lost a child, as it is important to be able to readjust to new family dynamics at times like these. We also sponsor rooms in special accomodation which houses families who have sick children in hospital, to enable mum, dad and siblings to be close to their poorly child. 

 

The past six years have been amazing, we have seen the charity grow from strength to strength. 

To find out more about The Lily Foundation please visit our websitewww.thelilyfoundation.org.uk

I know I have asked before, but please sponsor me - the money you help us to raise year on year really does make a difference.

Thanks

 

DAVE

 

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