Thanks for taking the time to visit my JustGiving page.

On 3rd September I'll be completing my first ever sky dive to raise funds for the AT Society.  Please spare any amount you can to support me and this wonderful charity.

This is an incredibly worthy cause and a very personal one for our family.  In December 2018 our son Rhys, who is now 5 years old was diagnosed with AT.  Ataxia Telangiectasia (AT) is a rare, inherited genetic life-limiting condition for which no effective treatment currently exists.  AT is characterised by ataxia (poor balance) leading to limited mobility/physical disability, immunodeficiency resulting in frequent coughs/colds affecting long term lung function, increased cancer susceptibility and radiation sensitivity. 

Rhys's diagnosis was a pivotal moment for us - in this single moment all our 'simple' plans and hopes for Rhys and our family were thrown into disarray and we were faced with coming to terms with the fact that our precious son is affected by this very rare and devastating condition.  It is only with the great support of the team at the AT Society and all others supporting us that we've been able to process this, focus our energy on enjoying the good times we have and doing all we can to support Rhys.

The AT Society helps people living with AT by providing invaluable support from the shock of the initial diagnosis through to treatment and the challenges of everyday living, they provide support, advice and advocacy for people with AT and their family, friends and carers. They also liaise with and offer advice to professionals and fund research to find treatments and a cure.  

With leaps being made in understanding rare and complex genetic conditions there is cause for optimism that treatments and ultimately a cure are within reach.  Every penny raised will help towards reaching these goals.

Thank you so much for taking the time to visit my page and read this.  If you can, please donate and help us to overcome this cruel condition!

With complete gratitude,

Dave/David/Macca

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