Story
Thanks for taking the time to visit my JustGiving page.
This year we have been given the opportunity for us to take Cameron to Lourdes with his school Mavisbank.
As some of you are aware he was born with a very rare condition hemimegalencaphaly which affects only one in a million children. He has under went 3 hemispherectomies detatching one half of his brain from the other in an attempt to stop the 100+ seizures he was having on a daily basis. Cameron has been left with hemiplegia, being paralysed down one side of his body, he is none verbal and has to be peg fed as it is too dangers for him to eat orally and unfortunately he still suffers from daily seizures.
We hope to take him to Lourdes in a specially designed bus fully equipped to help with Cameron’s need throughout journey. How this is quite costly as you can image.
So if you can help in anyway for us to take Cameron this journey, anything would be great appreciated. Thanks xxx
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