DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.

DEBRA have funded research in our laboratory at University College London and Great Ormond Street Hospital for Children (which focuses on the respiratory disease some patients with EB suffer from) and I'm running with their amazing team this year to help awareness of EB and vital funds for their work with patients.

You can find out more about DEBRA at https://www.debra.org.uk. 

Together we #FightEB and together we will beat EB.