William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.

Duchenne MD is one of the most fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in a progressive loss of strength and is caused by a mutation of the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystophin.

Life expectancy is improving as standards of care and knowledge about DMD increase however, there is no cure for Duchenne.

As a family we have never heard of this condition before, and we are still learning. We are hoping to raise much needed funding to help charities develop their research and campaigning required to find a cure for DMD.

If you would like to donate, please do, we really want to find a cure and save our boy.

Thank you,

Matt, Jo, William & Phoebe

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