In 2012, my son Keiran experienced life changing illness and was

to lose weight and was going to the toilet up to 20 times per day, following further tests ,the consultants advised us that  Keiran was now diagnosed with a second immune disease known as Colitis.

Since both these diagnosis'. I would describe our lives as being a whirlwind of distressing and upsetting times, however Keiran has still managed to uphold a job and remain positive.

Recently, we have noticed that some of the side effects aligned to the Liver disease have returned.  At the last outpatient appointment in   June 2019, the consultant advised that the Liver disease has now become ‘chronic’ and the liver is not repairing as they had hoped and consideration would need to be made for Keiran to have a Liver Transplant.   Both Keiran and I were in deep shock as this was not the plan.

Early September 2019, Keiran went through a comprehensive range of physical tests to be considered for a Liver transplant and on Wednesday 18^th September Keiran has been placed on the Liver Transplant list.

Please see Keiran’s story:….

Living with these diseases has changed me a lot. Going through different pains physically and emotionally has put a big strain on me.

I felt that I had been fighting a never ending battle. The support from family and friends has been amazing through this very challenging time

It has been a crazy rollercoaster of emotions for me trying to keep strong and not give up has been very hard, to keep smiling and make sure I could be the best version of me at that point of time.

It has been an incrediable journey of ups and downs but it has made me the person I am and all the lessons I have learned I am grateful for as I can tell my story and help others in my position or who may be beginning there own story with a liver disease.

As I enter a new chapter with receiving a new liver ,I am anxious but intrigued by the new lessons I can learn from this next stage of my life.

Children’s Liver:
Disease Foundation is the only UK charity dedicated to fighting all childhood liver diseases.  The charity rely almost entirely on the donations and fundraising activities of supporters to be able to carry out
their vital work. 

On 28^th October, 2019, a group of us, will be walking up Snowden Mountain, North Wales, to raise much-needed funds for this charity and we hope that you will  support us.

 Childhood liver disease – the facts:

Every week 20 children in the UK are diagnosed with a life-threatening childhood liver disease

More children in the UK are currently diagnosed with a liver disease than childhood leukaemia

There are over 100 different liver diseases that can affect babies, children or young people; all require a lifetime of care

For most childhood liver diseases the cause is unknown

Liver disease has no cure

The need for CLDF’s services is growing – and without your support we will not be able to continue our vital work. Every donation, however big or small has the potential to make a huge difference…

 £5 funds a vital information pack for a newly diagnosed family

£20 funds a GP surgery pack to help inform healthcare professionals of the early warning signs of liver disease

£80 funds telephone support for four young people with a liver condition

£125 funds a family to attend a family day, meeting others who understand their situation

£250 funds a hospital clinic visit by the Family team, offering support and information

£800 funds a young person for CLDF’s Breakaway residential trip

£1,800 funds a young person for CLDF’s Talk, Tell, Transform project

£5,000 funds a research grant

Please support us..

Love & Peace,  Keiran, Delores and Family