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Delyth Evans avatar
Delyth Evans

Motor Neurone Disease Appeal

I am doing the Cardiff half marathon for MND for Funding Neuro because In memory to our beutiful Aunty Pat

120 %
£1,087.26
raised of £900 target
by 44 supporters
Donate
  • In memory of: Patricia Burton
  • Event: Cardiff Half Marathon 2019, 06 Oct 2019

Motor Neurone Disease Appeal

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.

Charity Registration No. SC042061

Story

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition. The work led by Bristol-based neurosurgeon Professor Steven Gill brings combines three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery CED. It is known that specific viruses can have a therapeutic effect on motor neurons and a technique called Convection Enhance Delivery (CED). This is able to deliver these viruses directly to the neurons in the brain. For many diseases such as MND. Delivery of genes to affected neurons to correct or repair defects has been a major challenge. The cost of the pre-clinical stage is £150,000. Thanks to My Name5 Doddie Foundation we are a third of the way there! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.

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