Happy, full of life, a whirlwind of loveliness, five-year-old Lulu just has a great big smile that lights up the world. But in January 2018, just months after starting school, she was diagnosed with high-risk neuroblastoma and it had spread to her bones, bone marrow and lymphatic system.Lulu immediately started chemotherapy and surgery, and more chemotherapy, stem cell harvest, high dose chemotherapy, radiotherapy and immunotherapy (which she is currently having) followed.Her family want Lulu to access treatment in New York a clinical trial which is showing promise in reducing relapse rates, which near 50% with high-risk neuroblastoma. If that happened to Lulu, her chances of survival would drop to less than one in ten. Her parents are launching an appeal to raise £162,000 by July 2019, and hope Lulu will be in remission at the end of immunotherapy to be able to access the treatment.

My mum is running the London Marathon on the 28th April 2019 for Lulu and I decided that I wanted to do something to try to help raise money for her. I like swimming at our local gym, Towers, so I worked out how many lengths I would need to swim to do the marathon swimming. I need to swim 2096 lengths! I am aiming to complete this by 28th April 2019 - if you can make a donation to support me, thank you. 

Charlie Burgess