Alanna and I will become part of Team100 Make Today Count, an initiative by local fundraising group Leap for Luke, who are attempting to get 100 people from across Northern Ireland taking to the skies in February 2017, to create awareness of Duchenne Muscular Dystrophy
and to raise funds.
Alanna and I are skydiving in support of our colleague Claire's 5 year old son Luke O'Hanlon who suffers from Duchenne Muscular Dystrophy. By being part of Team100 we're hopeful that we can help Claire and other families in Northern Ireland to one day gain access to drugs that could add years to their children’s lives.
Yes, a sky dive is scary business but there’s nothing as scary as the prospect of losing your child.
Duchenne Muscular Dystrophy, a life limiting muscle wasting condition that leads to increasing disability and has a Northern Ireland life expectancy of just 19 years old. Scientists are at a point where they could save this generation of children living with Duchenne and we are up for anything that will help them to achieve this.
If you are up for the challenge and want to jump with us all you have to do is visit http://www.musculardystrophyuk.org/events/make-today-count/ and register for just £29 (early bird rate ends 31st October) or donate here and help us raise much needed funds for the Duchenne Research Breakthrough Fund run by Muscular Dystrophy UK.