Story
On 31st May - 8th June 2019 my friend Mark Stock and I cycled 984 miles from Land's End to John O'Groats. We did to raise funds for the Galactosaemia Support Group (GSG).
My son Samuel has Galactosaemia, the GSG provide loads of support to those with the condition and those who look after other with it. Recent research cone by the GSG has hugely broadened the diet for people with galactosaemia which is invaluable to their health and well being.
The GSG bring families with galactosaemia into contact with each other and offer support where it is needed most. through the group the families are able to share experiences, help each other with problems and exchange information and ideas. We currently represent a wide cross section of members and their families, and continue to forge links with a network of other associations. A key part of our approach is to promote awareness of Galactosaemia within the medical and teaching professions, the food and pharmaceutical industries, and the general public. We organise events, away days and weekend breaks together, we also organise bi-annal medical conferences and seminars. We produce a wide range of literature and support material for members, in association with qualified dieticians, including newsletters and product updates.