Having only heard of this rare disease recently, whilst supporting a student at my school. I am now aware of how seriously ill sufferers can become. Cystinosis is a rare inherited disease, which leads to multiple organ disorders and as yet has no known cure. With better understanding It is possible for sufferers to lead a longer, fuller life.
So all, Nicola my daughter, and myself have to do is fall out of a plane, (10th April), hopefully attached to a hunky bloke, and help to organise a week of fundraising events (10th-15th April) at school including a Music and Dance Concert at school (13th April) and a non-uniform day on the 15th. I know times are hard, but please give generously to a very worthy cause.
With our support, it is the Cystinosis Foundation's aim to;
Provide support to all diagnosed with cystinosis, their families and friends.
Support research into the treatment of cystinosis.
Provide information about the disorder and advice on specialist sources of help for new symptoms developing in patients.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Kind Regards Di