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Daniel Booth avatar
Daniel Booth

Daniel's Dylan's darts marathon for Williams syndrome foundation

I am running a 12 hour darts marathon for Williams Syndrome Foundation because My son Dylan has been diagnosed with WS

82 %
£4,140.00
raised of £5,000 target
by 141 supporters
Donate

Williams Syndrome Foundation

We support people with Williams Syndrome to to help raise awareness.

Charity Registration No. 281014

Story

Thanks for taking the time to visit my JustGiving page.

I am raising money and awareness for the Williams syndrome foundation UK. It is a foundation close to my heart since my 15 week old son was recently diagnosed with the condition. Associated with Williams syndrome is a congenital heart condition. Dylan suffers with severe branch pulmonary artery stenosis, small blood vessels throughout his body, hypertension and left and right ventricular hypertrophy. Due to the severity of his heart defect unfortunately it is not possible to operate or offer any medical assistance to better his situation.  

Therefore we are raising money to help the famalies of children suffering with WS to offer them the care and support they need.

Williams syndrome is so rare that only 1/18000 people are diagnosed with this syndrome, so raising awareness is a key part of the charities work.

Please donate what you can.

Thank you in advance for all your care love and support.

Dan, Chantal and Dylan.


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