Emer & Suzanne Sahara Trek fo Dystonia

Suzanne OToole is raising money for Dystonia UK
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Sahara Desert Global Adventure Trek · 21 February 2013

Dystonia UK is the only UK wide organisation driven to ensure that the 100,000 people across the country with dystonia have access to crucial information support and essential treatment. We exist to give hope and support to those living with Dystonia creating UK and worldwide awareness.

Story

Thanks for taking the time to visit my JustGiving page.

Dystonia is an incurable neurological movement disorder.

The different types of dystonia include:

  • Cervical dystonia - affects the neck muscles, causing the head to twist, pull in one direction or shake
  • Blepharospasm – dystonia of the muscles around the eyes
  • Oromandibular dystonia - affecting the muscles of the jaw, tongue and mouth
  • Laryngeal dystonia - affecting the speech muscles
  • Writer's cramp - affecting the ability to write and sometimes other hand-based tasks

There are several types of dystonia that affect more than one area of the body including generalised dystonia, which affects most of the body, frequently involving the legs and back.

Suzanne became involved with Dystonia a number of years ago and after seeing the challenges that both adults and children face living with this condition she decided to try to raise money for Dystonia UK, an organisation that is really a lifeline for many Dystonia sufferers.

So please dig deep and donate now.

Donation summary

Total
€5,524.02
+ €37.44 Gift Aid
Online
€3,524.02
Offline
€2,000.00

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