Eva and Amaira


Fundraising for Neuromuscular Disease Foundation (NDF)
raised of £1,000 target
We fund programs/research focused on cures to improve lives of people with GNEMyopathy


Thanks for taking the time to visit my JustGiving page.
We are raising funds to support muscular dystrophy charity.

Eva and Amaira, our 7-year-olds (6, when published) have authored their first book - "Short Stories: by the children, for the children!"

Written during the pandemic lockdown and inspired by various events- from dreadful Australian bushfire to a fly stuck in a web, these short stories carry a great message of #empathy and #inclusion.

They appeared on ITV News to share their book as well as a new  project #BeingPurple that targets disability inclusion (www.beingpurple.co.uk)


Here is the UK book link --
Short Stories: By the children, for the children! https://smile.amazon.co.uk/dp/B08TLFFNBD/ref=cm_sw_r_wa_apa_i_oDYcGb0NQJXZG

Proceeds from the book sale go to the charity.

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About the charity

NDF is the world's largest non-profit org focused on GNE Myopathy-a rare, genetic, adult onset neuromuscular disease. Our mission is to enhance the quality of lives of people living with GNE Myopathy through advocacy, education,outreach and funding critical research focused on treatments and a cure.

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