EB Awareness Week runs from 25th to 31st October. It is
a time to increase awareness of
Epidermolysis Bullosa (EB) and to promote the need for a cure.
“Raising awareness is crucial as it helps to raise the funds that are needed to support families like us living with EB right now, and to carry on the essential research into finding a cure.”
“I dream of a world where no one suffers from EB – where Isla can dance and run without damaging her skin; where I can hold her hand without causing her pain; where we can be a normal family.” Rachael (Isla’s mum)