Lewis was born in November 2002. He was diagnosed with West Syndrome at 3 months of age. This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types which causes severe global developmental delay.
He can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried. He also is severely disabled and unable to do anything for himself relying on us for all his personal care needs. He requires 24 hour care on a daily basis and we have both had to give up work to look after him.
“I have always wanted to be able to access my back garden at home, but I am not able to as our garden path is too small for my wheelchair and we have no ramp. I absolutely love any sort of sensory equipment, and I would love to be able to turn my back garden into a sensory garden with a water feature, wind chimes and a bamboo bridge.
This would enable me to access our garden and be pushed around in my wheelchair, as at the moment I can’t go in our garden at all, and I am isolated with either Mummy or Daddy inside our house, while my sister and brother play outside. To be able to access my garden would be absolutely wonderful and would prevent me from being isolated inside. It would enable me to spend quality time in our garden with my family, something I am unable to do at present.”
Should we exceed the target amount or if we do not raise enough funds, or if they cannot be used for any other reason, the funds raised will go to the general funds of Tree of Hope to assist other sick children. I really hope you are able to help contribute to my dream of a Wheelchair accessible sensory garden.
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