Mary Meilton
A year of madness for EDS UK
Fundraising for Ehlers-Danlos Support UK
Story
A couple of days before the start of 2018 we had an idea. It was a slightly bizarre idea but being slightly bizarre people, we have decided to carry out our idea.
So here it is, throughout 2018 we will be embarking on a new challenge each month. These challenges may be difficult, occasionally terrifying and will push us to the edge of our friendship (whose stupid idea was this anyway?!) At the start of each month we will announce the next challenge, but until then each challenge will be top secret!
Okay so why are we doing this?
We would like to raise money for a very important charity. EDS UK help fund research and support for people with Ehlers Danlos Syndrome (EDS). What is EDS I hear you cry..... well here is Mary's 30 Second guide to EDS
Cue dramatic music and dim the lights
EDS is a group of genetic conditions which affect your connective tissue. There are 13 different types of EDS but the most common (and type Mary has) is Hypermobile EDS. Symptoms of EDS include ( clears throat) : joint hypermobility and instability, being prone to dislocating and spraining joints, problems with skin making it easy to tear and scar, fatigue, issues with regulating blood pressure, heart rate and temperature, digestion problems, pain.... lots and lots of pain. There is currently no cure for EDS and it is poorly understood by most health professionals. Diagnosis can often take a loooong time and patients are often made to think that they are making their symptoms up. It is an area of medicine that desperately needs more research to increase understanding and treatment options.
So will you help us raise much needed funds and awareness for this condition? EDS affects each one of us completing these challenges, either directly or through friends and family. We want 2018 to be the year we fight against EDS!
Thank you so much for taking the time to read this and we hope you have a beautiful day!
Lots of Love,
Mary, Rhiannon and Abbi.
2018 is going to be a cracking year.
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12 months of raising awareness and money for Ehlers-Danlos Support UK is done!
When we decided to do these challenges at the start of the year, we had a dream of raising £1,000 and a little bit of awareness. 12 months later and we are so happy to say we have managed to raise over £3000! Not only that, but we have had some great awareness raising conversations with people, we've talked about EDS on the radio and we have even met a couple more EDSers living in Chippenham!
So we want to say a massive thank you to every person who has donated and supported our challenges this year, it has meant so much to each of us.
Love Mary, Rhiannon and Abbi
2018 has been a cracking year