Elaine's running a Marathon...

Elaine Murphy is raising money for SOFT UK
In memory of Tiernan Murphy
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Brighton Marathon 2022 · 10 April 2022 ·

SOFT UK was founded in 1990 by Christine Rose and Jenny Robbins. As mothers, they were unfortunate enough to discover first-hand the lack of support and information available to families affected by Patau’s syndrome (Trisomy 13), Edwards’ syndrome (Trisomy 18) and related disorders.

Story

SOFT UK was started to provide a much-needed support network for children and families affected by Pataus' and Edwards' Syndrome and related disorders. Since its humble origins almost 30 years ago, SOFT UK has grown into a much larger organisation run by families for families.Ninety percent of the volunteers and staff team have a link with Trisomy within their own families, helping to alleviate the isolation that comes with a Trisomy diagnosis. 

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Donation summary

Total
£4,082.91
+ £160.00 Gift Aid
Online
£4,082.91
Offline
£0.00

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