On April 8th 2017 we held the first meeting of the Irish Regional Branch of Aniridia Network UK in Dublin, bringing together people with aniridia and their families from across all four provinces on the island of Ireland, which was a great success. As Irish Representative for Aniridia Network UK I would like to build on this success and continue organising events in Ireland annually.
Due to popular demand I hope to bring over one of Europe's leading ophthalmologists with expertise in aniridia. Aniridia is a rare genetic eye condition where children are born without an iris and with generally undevelped eyes which leaves them visually impaired and highly sensititive to light. It is a complex eye condition with several potential complications (including glaucoma, cataracts, and corneal clouding) which requires careful monitoring and specialist treatment throught out childhood and into adult life. By bringing one of Europe's leading specialist's over to Ireland to speak I hope to increase the knowledge of patients and doctors, and promote research within Ireland.
Organising an event like this requires money for room hire, catering, audio ivsual equipment, travel and accomodation costs for the speakers etc. Aniridia Network UK receives no government funding and all events are organised on a voluntary basis and funded from donations.
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