Thanks for taking the time to visit my JustGiving page

Ellie and Stuart  are doing a Tandem Skydive on the 28th of March 2012 at the Langar Airfield Nottingham in Aid of the Mucopolysaccharide Society. The  society do vital work supporting the children who have this disease, and their families. 

Blaise has Sanfilippo Syndrome, this is a degenerative disease by a missing enzyme (heparin sulphate). As the disease progresses it causes the child to lose their walking and standing ability, their cognitive abilities, speech , their limbs, skeleton and muscles begin to deform and they lose their swallowing ability and have to be fed via a gastric tube. THERE IS NO CURE. Blaise is in the third and final stage of this awful disease but he still keeps smiling. Please sponsor me as much as you can. Any amount will be gratefully received as every penny counts. 

Also if anyone is interested there is a Charity Night arranged on 7th April 2012, tickets are £12 and will be starring the excellent Gordon Hendricks, winner of Stars in their Eyes 2005, European Winner 2011 of the Elvis Tribute Act competition, and he came into the last few of the Worldwide Elvis Tribute Act in Memphis, Tennessee,

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So please dig deep and donate now.