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elspeth berardelli avatar
elspeth berardelli

Paolo and Elspeth are marking their combined Century with several fun filled events combined with renewed push for Action Duchenne. Recent research is extremely positive and a cure is now credible.

2 relay teams, Edinburgh Marathon, Sun 29th May. for Action Duchenne because we are still racing against time to find a cure.

156 %
£12,495
raised of £8,000 target
by 216 supporters
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  • Team members: Anna, Carla, Ali, Mo, Laura, Lindsey, Chiara and Elspeth.
  • Event: The Rock 'n' Roll Edinburgh Half Marathon 2012, 15 Apr 2012

Action Duchenne

We fund research into Duchenne MD to help everyone affected by the condition

Charity Registration No. 1101971

Story

Thanks for taking the time to visit my JustGiving page.</p

Having taken time out to devote to individual projects Team GB are making their eager return to the track. The trainers have been dusted off and training is in full (ish) swing. This time it's a real family affair with all Giorgio's 5 Aunties and his 2 big sisters responding to my gentle persuasion!

As ever our driving inspiration is the irrepressible Giorgio. He continues to amaze everyone around him with his strength of character and sheer grit. Whether it's skiing, biking, swimming ,dancing or whatever goal he's set himself he refuses to give up how ever difficult his body makes things for him.

Since our last big fund raiser there have been promising results in the quest to find significant treatments and ultimately a cure for DMD. But as ever time is against us and further progress is very much dependant on cash injections from charities such as Action Duchenne. 

Your continuing love and support is very much appreciated by us all. Without your help everything would be so much harder. 

p>When Giorgio was diagnosed with Duchenne Muscular Dystrophy in 2008 our world was turned upside down. With this new terrible diagnosis combined with his complex heart condition, we felt the future was pretty bleak. However since then, largely due to the tenacity and enthusiasm of Giorgio himself we have managed to get ourselves back on track and feel it is very important to be proactive in fundraising and increasing awareness of this condition.

With only 100 boys being born with DMD in UK every year it is not deemed important enough to merit significant government funding so public fundraising is vital. Presently there are some very promising trials being undertaken, with large donations from Action Duchenne. It is important that the momentum is maintained and that a cure can be found very soon. With your help, our boys who live with this, debilitating muscle waisting condition, can have a future.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

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