Emily's Journey to Jared

Emily Lowther is raising money for Kidney Research UK
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Journey to Jared · 1 May 2018

We are the largest charity dedicated to kidney research in the UK. Kidney disease ruins and destroys lives. Treatments are gruelling, relentless. There is no cure. We say this isn't good enough. We will transform kidney health. Kidney disease ends here.

Story

Some of you may know that one of my oldest friends Mandy has a very poorly baby boy Jared.

He turned one earlier this year and has already been through more than many will in a lifetime.

Jared has a condition that affects one in 10,000 boys called PUV (posterior urethra valves).

This affected his kidneys and he was born with stage 5 CKD end stage renal failure. He began dialysis at 9 months old and now has dialysis 6 nights a week at home that he's on for 10 hours.

He is fed through a tube in this tummy to ensure he has the right amount of nutrients. He is on 10 different medications including one injection daily.

Mandy has to keep up with blood tests every fortnight, clinic visits and countless urine and kidney infections resulting in regulars trips to Manchester Childrens Hospital.

Jared will be having a loop ureterostomy next month to divert urine and prevent the bladder from infection.

For Jared and his family, a transplant can't come quick enough but needs to meet specific height and weight criteria. but hopefully in 2-3 years he will be ready!

Until then, I want to try to raise as much money and awareness for Kidney Research as I can!

Throughout the month of May I will be running 150 miles which is the distance between my house and Jareds! Included in this is one monster weekend with Tough Mudder on 19th May and the Manchester 10k on 20th which Mandy and some of my other amazing friends will be doing too!

This will be a huge challenge for me but it will be worth to help raise lots of money which will help Jared and others like him in the future 💕

Donation summary

Total
£1,300.91
+ £268.75 Gift Aid
Online
£1,300.91
Offline
£0.00

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