As you may be aware our darling Marley suffered a stroke at birth and then in October 22 unfortunately he started having a significant amount of spasms. After a stay in hospital he was diagnosed with Infantile Spasms. He is still undergoing treatment for this which will (hopefully) stop his Epilepsy episodes. He is such a fighter and is developing unbelievably well considering his condition.

I'm planning on using his strength, determination and smile to get me over the finish line. 

I have decided to raise money for UKIST. The UK Infantile Spasms Trust (UKIST) provides a vital network of support to families with children affected by the rare seizure disorder Infantile Spasms, also known as West syndrome. This is a serious seizure disorder, and unless it’s recognised and treated early, the prognosis for affected children can be very poor. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little-known condition. By supporting UKIST, you will make a real difference.This charity has already been a great support with the many questions I have had as an anxious Mummy.