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Four years ago, our friends son Max Edney, aged 12 months old, suffered two broken legs in under two months. Their world immediately changed forever.

They found themselves in a 'dual investigation' between Doctors and Police & Social Services. They were looking to understand why their little boy had broken both legs in a matter of weeks... they were desperate to find out why too!

After being told "their son may not come home with either of them" they found themselves in a very different world to the one they had known.

Max was diagnosed with a rare condition called Osteogenesis Imperfecta (OI) also known as Brittle Bones. This was bitter sweet; the 'suspicion' of child abuse had now been taken away, but in its place was a life long condition which their son had to deal with.

This year, children in the UK (and across the world) who have OI will be taken into care, because there will be suspicion of child abuse. If a child is then adopted, they will still break bones, but will never be able to be 'given back' to their natural parents, even after they have been diagnosed with OI.

The fact is, OI is a rare condition, so sadly, it is 'more likely' to be abuse than OI.

We want to raise awareness so medical staff, police and other professional agencies think 'Could it be OI?' before taking children away from their parents.

They, as a family have had so much support from The Brittle Bone Society, that we wanted to 'make some noise' to raise awareness of this rare condition. We (Emma and Ed plus QBE) also wanted to raise funds to help with much needed research, emotional support and physical support for the children and adults who have OI.

Max has a milder form of Brittle Bones. He has 'only' broken 14 bones in the last 4 years. Others who have a more severe form of OI have broken over 250 bones!

Brittle bones, as the name suggest means that bones break with little or no trauma. Though fragile bones are the hallmark of OI, other medical problems, including loose joints, early hearing loss, brittle teeth, respiratory problems and 'easy bruising' are also part of the condition. Many people with this condition live their lives in wheelchairs.

Please give what you can afford as it will make a real difference to the people affected by OI.

Thank you for your support. We (Emma and Ed) are taking in a number of events over several months ending in June 2018, finishing with The 3 Peaks Challenge. 

QBE Insurance Europe (our employers) are generously helping us by match funding your donations up to £5,000.

With love and thanks, from:

Emma and Ed...........and of course from all at the Brittle Bone Society.

www.brittlebone.org