Nicki Lygo

The Lygo family 'End Duchenne' fundraising challenges!

Fundraising for Duchenne UK
by 1138 supporters
Event: The Grand Union Canal Challenge 2014, from 28 June 2014 to 29 June 2014
Participants: The Lygo family & quite a few other beautiful people :)
Duchenne UK

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RCN 1147094
We have one clear aim: to End Duchenne


The Lygo family & friends are walking, running, cycling, swimming & playing our way to help end the devastating disease that is Duchenne Muscular Dystrophy. This page is our ongoing family fundraising page, covering all of our events & challenges. We truly believe a cure for Duchenne is but a few short years away and if we work hard, this could be in time to save a generation of children with the disease.

Please see for more information.

The boy in the photo is our lovely friend Tom. He is now 14. He is the son of our amazing friends Becky and Gary.  When he was 4 years old, just a few days after his little sister, Amy, was born, Tom’s family was given the life-shattering news that Tom had Duchenne Muscular Dystrophy.

What is Duchenne Muscular Dystrophy?

Duchenne is a severe, progressive and currently terminal disease. It is a truly heartbreaking condition, in which previously physically able children experience gradual and permanent wasting of their muscles, eventually rendering them unable to move.  It is a genetic disease, which, because of the way it is inherited, primarily affects boys.   There is currently no known cure.  Those affected require a wheelchair by 10 -14 years old and usually die by their early to mid-twenties as their heart and breathing muscles become affected.

However, there is hope!  Clinical trials are underway looking at the potential of several different medications to slow the progression of this distressing disease, or to stop it in its tracks entirely.  But this research can only continue with the input of decent amounts of money.  Since it is estimated that a significant breakthrough is only 5 to 10 years away, we are in the wonderful position to be able to make a real difference, right now!  So please, please, donate! 

Thank you from all of us and, of course, from Beccy, Gary, Amy & the amazing Tom!


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About the charity

Duchenne UK

Verified by JustGiving

RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

Donation summary

Total raised
+ £515.00 Gift Aid
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Offline donations

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