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Nicola Lygo

The Lygo family 'End Duchenne' fundraising challenges!

We are holding this fundraising bonanza for Duchenne UK because a treatment breakthrough is in sight!

£41,975
raised by 579 supporters
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  • Team members: The Lygo family & quite a few other beautiful people :)
  • Event: The Grand Union Canal Challenge 2014, 28 Jun 2014 to 29 Jun 2014

Duchenne UK

We fund medical research into Duchenne to end this disease in ten years

Charity Registration No. 1147094

Story

The Lygo family & friends are walking, running, cycling, swimming & playing our way to help end the devastating disease that is Duchenne Muscular Dystrophy. We truly believe a cure is but a few short years away and if we work hard, this could be in time to save a generation of children with the disease.

Please see www.endduchenne.co.uk for more information.

The boy in the photo is our lovely friend Tom. He is 8.  He is the son of our amazing friends Becky and Gary.  When he was 4 years old, just a few days after his little sister, Amy, was born, Tom’s family was given the life-shattering news that Tom had Duchenne Muscular Dystrophy.

What is Duchenne Muscular Dystrophy?

Duchenne is a severe, progressive and currently terminal disease. It is a truly heartbreaking condition, in which previously physically able children experience gradual and permanent wasting of their muscles, eventually rendering them unable to move.  It is a genetic disease, which, because of the way it is inherited, primarily affects boys.   There is currently no known cure.  Those affected require a wheelchair by 10 -12 years old and usually die by their late teens or early twenties as their heart and breathing muscles become affected.

 However, there is hope!  Clinical trials are underway looking at the potential of several different medications to slow the progression of this distressing disease, or to stop it in its tracks entirely.  But this research can only continue with the input of decent amounts of money.  Since it is estimated that a significant breakthrough is only 5 to 10 years away, we are in the wonderful position to be able to make a real difference, right now!  So please, please, donate! 

Thank you from all of us and, of course, from Beccy, Gary, Amy & the amazing Tom!

 

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