Thanks for taking the time to visit my JustGiving page.

i chose this charity as its a local charity that i know people who have kids with this condition. its underfunded and not back from the NHS as of yet. this charity relies on the community to fund the important research that goes towards finding a treatment or cure for this progressive condition, this is why i am asking for help where ever possible to help fund the research which is so vital for the children's future who are affected with this.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.