In May 2018 my mom Milli was diagnosed with PSP. Progressive supranuclear palsy (PSP) is an uncommon brain disorder that affects movement, control of walking (gait) and balance, speech, swallowing, vision, mood and behaviour, and thinking. The disease results from damage to nerve cells in the brain and has no cure.

PSP affects 3-6 in 100,000. PSP is often misdiagnosed and there are no effective treatments. It is likely that my Mom has had the disease for several years before she was diagnosed.

I decided to take part in the London Marathon as a personal challenge and to raise awareness of this awful disease.

PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. They aim to improve the lives of everyone affected by PSP and CBD. We rely entirely on voluntary donations, and that's why we need your support.