Our baby son Evan was diagnosed with Patau's Syndrome (Trisomy 13) shortly after our 20 week scan. For the remainder of the pregnancy there were no guarantees that he would make it to full term and if he did, how long he would live for.
Evan Christopher Lane was born at 02:43am on Monday 19th September 2016. With great sadness, we watched our young warrior gently slip away in our arms later that afternoon. He fought hard and gave us the precious gift of cuddles and memories for over 10 hours. There was enough time for him to meet his very proud big sister, loving grandparents and uncle and even give us a cheeky smile. We are absolutely heartbroken and already miss him more than we can say but are so happy that we got the chance for all those unforgettable moments.
During one of our hospital appointments, we were told about Little Havens, a local children's hospice who provide support for children with incurable illnesses and their families. After visiting the hospice we knew immediately that whatever the outcome, we would spend the time following Evan's birth with them. Little Havens were a wealth of care, compassion, hugs, shoulders to cry on, hot meals, cups of tea, cake and so much more.
Being given the opportunity to spend that week with Evan and in the care of such warm, supportive and professional staff meant that we had the time and space to process all that had happened. Without Little Havens, we wouldn't be feeling as positive or strong as we do right now.
We hope that we will be able to raise money to ensure that more families in situations like ours are able to receive such incredible care and support.
Even though Evan had such a short life, he has had a huge impact on all of us and we will be forever changed for the better.
Thank you all so much for being there for us, both now and over the last few months.
Aron & Jen xx