On April 7th 2017, Eva made her final journey. It was with bone weary sadness and unspeakable grief that we made the choice to move her from St. Georges Hospital ICU unit back home where doctors would remove her life support machine. She traveled in the ambulance with Mum, while I drove back ahead to explain to our other two children that it was the last time they were going to see their sister.

This is the stark reality of a terminal diagnosis. In a child, it just makes no sense.

Our only consolation, Eva passed away quietly in our arms, safely in a place she knew and loved.

We will re-create her final journey from St. Georges Hospital in London to Herne Bay. It marks the final journey Eva made.

On Saturday 6th April 2019, I will be running the 68 miles in one day with a small team including my brother Lee Giles and very good mate Jim Cullen (both in profile picture), and in doing so hope to raise money to support other families going through the nightmare of a childhood terminal diagnosis.