(PANS and PANDAS are conditions causing inflammation in the brain resulting in neuro-psychiatric symptoms such as OCD, tics, eating disorders and anxiety along with many many more. More commonly affecting children, these conditions can be isolating and life changing. PANS PANDAS UK's mission is to ensure speedy diagnosis and effective treatment for sufferers by educating the medical community as well as offering support to sufferers and their families.For more information please see our website www.panspandas.org.uk)💚

I am diagnosed with PANDAS, it took me 8 years. There are not enough specialists out there, and not enough knowledge of this silent disease. My GP hadn’t even heard of it, which is the case for many doctors & professionals. 

My PANDAS started around age 14, starting with sudden onset social anxiety & school phobia. I am 22 now and have hundreds of symptoms including seizures, dystonia, rage, personality switches, depression, catatonia, OCD, dilated pupils, food restriction, and far too many more to list. This disease has taken so much from me, and due to being untreated and ignored for so long, what once was mild gradually developed into what feels like living hell. 

Many others out there with PANDAS or PANS are going through the same thing, and we NEED more help. This illness is a living nightmare and totally soul destroying. Finding the one doctor who will listen and actually begin tests to find out what’s wrong, changed my life. I am now on treatment. Awareness can be life changing💚🐼

On the 9th of October I am joining a 4k walk (in my wheelchair) to raise money and awareness of PANDAS/PANS💚🧠all funds goes to PANDASPANS UK to support families💚👩🏼‍🦽♿️